We hope that ECANA is a place for you to find education, connect with community, and read about the latest research. We know we can’t provide everything you need. That's why we put together a list of other organizations and their resources that we think might be useful to you. We consider each of these organizations to be friends of ECANA.
Have another resource we should add? Let us know, by getting in touch!
Endometrial cancer clinical education & resources
Society for Gynecologic Oncology (SGO) is the United States’ premier professional society for doctors who treat gynecologic cancers (gynecologic oncologists). They provide education, encourage cutting-edge research, and advocate for patients and members to improve care and research in gynecologic oncology. SGO resources:
Clinical guidelines for management of gynecologic cancers: Scroll down to “Endometrial Cancer” for more technical information on what is considered the “gold standard” for treating women with this condition; your care provider will be able to answer your questions about your treatment options.
Uterine cancer information for patients, survivors, and caregivers: This page includes links to clinical practice guidelines, specialist listings:
- Overview and general information about uterine cancer, including symptoms, risk factors
- Information about Lynch syndrome, an inherited predisposition to cancer that is linked to endometrial cancer
- Survivorship toolkit to guide your approach to treatment & long-term follow-up, including a printable endometrial cancer survivorship plan
Foundation for Women’s Cancer: a nonprofit organization working to end women’s cancer by advancing research, education, and awareness in partnership with the Society of Gynecologic Oncology (SGO). Foundation for Women’s Cancer resources:
- Endometrial Cancer Guide to help you clarify and understand the decisions that need to be made about your care for the treatment of endometrial cancer.
- Educational programs that provide the most current information about treatment options, research, and quality of life strategies taught by leading experts.
National Comprehensive Cancer Network - a non--profit alliance of cancer centers devoted to patient care, research, and education.
- Clinical guidelines on endometrial cancer for patients.This document gives a comprehensive overview of endometrial cancer and treatment options, and includes questions to ask to weigh your treatment options.
- The Virtual Reimbursement Resource Room has resources to help you navigate issues with insurance and reimbursement for oncology services.
Finding community, hearing stories
Real Black Grandmothers: The first and only digital archive of personal accounts, cultural artifacts, living and oral histories that captures the remarkable and diverse experiences of black grandmothers and their grandchildren from the past to the present. Find (and share!) stories and sayings about health, resilience, relationships, spirituality, and more!
Advocacy, research, and clinical resources for African-American and Black women’s health
Black Women’s Health Imperative: The only national organization dedicated solely to improving the health and wellness of our nation’s 21 million Black women and girls – physically, emotionally and financially.
You can also read their report: IndexUS describing lessons about being Black and healthy from 20 years of research from the Black Women’s Health Study.
Black Women’s Health Study: A research team – established in 1995 - working toward a better understanding of causes of illnesses and determinants of good health for Black women. You can read their research publications and newsletters to learn about what they’ve found in their research so far.
BLKHealth A platform to educate, engage, and empower the Black community in improving our health and wellness. Includes links to a blog with stories of articles about Black health and personal stories about health care experiences and a podcast series.
Check back often - this list will grow as ECANA expands our geographic reach!
Feminist Women’s Health Center: provides a range of safe and accessible reproductive health care services and community programs aimed at centering and empowering the patient and community using a reproductive justice framework
Diagnosing Illness: Cancer Support Resources: People worry about what will happen if they can’t work or if they can’t afford the treatments their doctors are suggesting. But many organizations offer resources to help patients and their caregivers find the support they need to navigate a cancer diagnosis and all that it means.